My father and ex-partner died from cancer within six weeks of each other - now Ive been given six months to live

A mother-of-four suffered the heartbreaking deaths of two of her closest loved ones just six weeks apart - before learning she was also suffering an incurable medical condition. 

Melanie Nast Young, 45, from Bega on the south coast of NSW has been diagnosed with a rare genetic condition that is causing her organs to shut down.

Ms Young has Alpha1-antitrypsin (AAT) deficiency, a genetic condition that causes major lung and liver damage.

The damage to her lungs has been so severe that they are only working at only 25 per cent capacity. Her heart is also damaged and there is potential damage to her liver. 

Tragically, a lung and heart transplant that could potentially save her life is not possible because of a neurological movement disorder called dystonia that Ms Young has endured for 10 years.

Ms Young has been told she could only has six months to live.

In March, Ms Young sadly lost her father to lung cancer, then to compound her grief, her ex-partner Todd Young passed away not long after, leaving three of Ms Youngs children without their father.

It has been a truly devastating year.

Melanie Nast Young  (pictured) is a 45-year-old mum of four from Bega on the south coast of NSW and is suffering from a rare genetic condition that is causing her organs to shut down

Ms Young (pictured) is much loved in the fishing community, having run her business Young Guns Fishing Adventures with ex-partner Todd Young, father to three of her children

With Mr Young, Ms Young introduced thousands of people to the world of fishing, including people with disabilities and at-risk kids

Ms Youngs best friend Mischelle said Its the worst story… you couldnt even write a worse story.

Ms Young is much loved in the fishing community, having run her business Young Guns Fishing Adventures with ex-partner Todd Young, father to three of her children.

With Mr Young, she introduced thousands of people to the world of fishing over 20 years, including people with disabilities and at-risk kids.

Mischelle told Daily Mail Australia what Ms Young endures with dystonia, a movement disorder that causes the muscles to contract.

Ive seen her whole body twist and contort and ... Ive seen her ... actually (have) her leg turn all the way around the other way, Mischelle said.

Even though she was suffering from the ravages of dystonia, Ms Young still worked with Young Guns Fishing Adventures.

A GoFundMe page has been created by Ms Youngs friends to give Mel a few resources to be able to do a few special things while she still can.

The page also states, Mel would like to have some special times with her kids before the cruel hereditary disease cuts things short.

Sadly, Ms Youngs close friend Frank Prokop who organised the GoFundMe said Ms Young is not well enough to tick off any bucket list items.

He praised Ms Youngs positive attitude.

Ms Youngs partner Todd sadly dies earlier this year, the pair both love fishing

Todd and Melanie share three children together who are now could also lose their mother

Ms Youngs close friend Frank Prokop praised Ms Youngs positive attitude, She (says) Im not brave, Im just stoic. You just got to get up and do it the next day, because theres no do-overs.

She (says) Im not brave, Im just stoic. You just got to get up and do it the next day, because theres no do-overs.

 It may not be fair, but its just the reality, he told.

Mr Prokop said Ms Young empowered women through fishing.

Her passions in life are teaching the next generation about how to move forward and to overcome obstacles and she uses fishing as her mechanism, he said.

Fishing is a quite strongly male dominated activity so shes kind of come in and said here I am.

Mischelle said Ms Youngs children have struggled to deal with their mums illness as they are still comprehending the death of their father.

Mr Prokop said Ms Young (pictured) empowered women through fishing, Her passions in life are teaching the next generation about how to move forward and to overcome obstacles and she uses fishing as her mechanism,

A GoFundMe has been created to support Ms Youngs children  

I think they just, its so unfathomable, they cant deal with it, she said.

Its horrendous.

The Go Fund Me page reveals the what Ms Youngs children are enduring.

Mels youngest is only 7 years old and has seen way too much for someone so young.

Mr Prokop said money raised through the GoFundMe will help support Ms Youngs three children who will be left parent-less and her current partner Jason who will be a single father to Ms Youngs seven-year-old.

Shes worried about what legacy she leaves her kids, he said.

I think more shes interested in now putting stuff away for the kids, for their education and stuff.

As the GoFundMe page states: Think about giving something back to someone who has given so much. 

The GoFundMe for Ms Young has so far raised over $5,000.